“We are heartbroken to hear that our Patron, Rob Burrow CBE, has sadly died. Rob was an inspiration, not only to the people of Yorkshire, but the entire nation, and across the world. Despite facing his own challenges, Rob was devoted to raising awareness and funds to help people living with motor neurone disease and their loved ones, until the end.


Rob, and his family, bravely shared his personal story with us all and showed us how to live life to the fullest in the face of adversity. Even when his own voice failed him, he gave a voice to the entire MND community giving people hope and spreading joy with his infectious smile and unwavering sense of humour.


Thanks to Rob’s dedication and support, we have now raised £5.8 million to help bring Rob’s dream to life, a specialist centre for people living with MND and their families. We’re honoured that we can continue to pay tribute to Rob and the everlasting impact he has had through the Rob Burrow Centre for Motor Neurone Disease at Leeds Teaching Hospitals NHS Trust. 


From everyone at Leeds Hospitals Charity, we send our deepest condolences and sympathies to Rob Burrow’s wife Lindsey, children Maya, Macy, and Jackson and his wider family and friends at this incredibly sad time.”

- Esther Wakeman, CEO, Leeds Hospitals Charity