Claire’s little boy, Jack, was diagnosed with Duchenne Muscular Dystrophy when he was four. The team at Leeds are doing everything they can, but there's no cure for Duchenne yet. She explained that they regularly make the 3 hour round trip into Leeds to the Research Centre, because Jack is involved in trialling new drugs – and the trials are the only hope they have.


Jack is only 10 but he knows he is going to die. In the meantime, Jack has told his parents that he wants to take part in as many drug trials as he can. When Claire asked Jack why he wanted to take part in trials he explained, "Because I want to help other little boys like me.” Claire thought her heart would break.


The research that goes on at Leeds is one glimmer of hope for Jack and other children like him. Every day Claire and her husband wait to hear some good news from the research centre. Until then they are just taking it one day at a time.

Help keep hope alive for families like Jack's.